disability, health care, Uncategorized

How getting Multiple Sclerosis turned out to be a good thing.

      MS has been one of the best things that happened to me. No really.

I spent most of my life taking care of other people. I worked in nursing homes, foster care homes for the elderly, and people with disabilities and it became my passion. But I worked long hours. I worked twenty years helping people with disabilities live alone in their own apartments, I was an outreach worker helping them with a myriad of tasks, shopping, banking, advocacy, problem-solving, crisis intervention. I was on call for five days a week and it was very stressful. There were days I worked 16 hours a day coming home and working well into the night to get my paperwork done, write care plans, and plan for my staff meeting where I supervised three assistants.

So it was ironic when I got MS and I was forced to retire at the age of 53. It allowed me to stop taking care of everyone and to focus on my health. I slowed down, enjoyed my gardens and potted plants, cooked by scratch, enjoyed more time with my boyfriend and my new life because I was around home more often

.Well, one day when cleaning out my closets I found my journals from when I first moved to Oregon when I worked in the Wallowa Mountains doing timber inventory, living in my tent, working in Wilderness areas. Well, as I sat there reading and chuckling, I thought this would make a good book and I started writing and produced three books that are in Rhe Eve Chronicles by Diane DeVillers,

If I wouldn’t have gotten MS I never would have had the time to write my books. Check out my author page at amazon.com  The biggest shift in my life was realizing that toxic emotions, people with toxic emotions were people I couldn’t have in my life anymore, they made me physically ill, draining all my energy. So I started taking care of me, I joke’ It’s all about me!! and that was the biggest thing I had to learn, with MS if I do too much or get too hot it sets me back

. I have the Progressive MS and in ten yrs haven’t gotten worse, I have a half-paralyzed leg and wear a brace to keep my foot from dropping down and tripping me, I have severe back pain from pulling that leg around when walking, and the fatigue that people with MS well know.

The best thing for me is I’m into exercise, twice a day I ride my inside bike for nearly an hour and twice a week I swim laps for an hour. I swear that I feel better mentally and physically and I think the exercise is keeping my half-paralyzed leg keep from atrophy.

So although the fatigue gets me I have to save my energy to last all day it’s like I have a bucket of water which is my energy and every task I do it’s like taking a ladle full of water out, so I have enough energy to last all day I see my bucket getting empty as the day goes along. If I don’t pay attention to it I pay by having to lay in bed the next day. So MS has been very good to me.

Who knows what the future will be but I’m fine with itdide and crabby

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disability, Multiple Sclerosis, Uncategorized

Low Vitamin D is part of why people get Multiple Sclerosis

https://www.verywellhealth.com/vitamin-d-and-multiple-sclerosis-2440633?utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content=17344920&utm_term= When I found out I had Multiple Sclerosis I had very low Vitamin D and with the getting Mono when I was 15, those were triggers, also I had chronic stress which I think was part of the cocktail that triggered MS. No one knows for sure what causes MS and so far there isn’t a cure.

I have the Progressive kind of Ms and I have the heat sensitivity, the fatigue and my right leg drag from partial paralysis. But I am lucky since I retired 11 years ago at age 53, my MS hasn’t progressed. It’s all about the immune system that was damaging the nerves in my brain causing scars, which interrupted the nerve that serves my right leg.
I think staying active help keep it at bay, I ride my incumbent bike, 45 minutes twice a day, i swear it keeps my MS from progressing. I ride my indoor incumbent bike 45 minutes twice a day and Swim laps twice a week and I swear to stay active is helping. Also, 70 percent of people with MS get depression, I’m far from that, I think staying active and resting to fight fatigue is helping me keep the MS from progressing.

Check out MS World site it was started by a woman with MS who lives in Eugene Oregon. And MS Society and the MS Foundation where you can get up to date progress on medications and treatments, and you can post a question on one of their blogs.

Keep active and it’s time to take care of you now.70354-purple_heather_for_prince2b252812529

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disability, Multiple Sclerosis, Uncategorized

Is the cure for Multiple Sclerosis getting closer?

http://www.cambridge-news.co.uk/business/technology/meet-cambridge-scientist-verge-curing-13129687  

A Cambridge scientist is getting close to finding a cure for MS. 2.3 million American’s would love to see that happen. Read about this woman’s discovery about how to stop the immune system from attacking it’s own body.dide on the beach 2014

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disability, Multiple Sclerosis, Uncategorized

Research on motion in people with Multiple Sclerosis

Read this thought provoking article about studies being done about motion and movement in people with MS. How exercise is so worth doing, even though you would think it would add to your fatigue, it actually helps with it.

hhuman-ingen-Warren-Keelan-from-Australia-captured-these-beautiful-Ocean-Waves.ttp://www.msconnection.org/Blog/May-2017/New-Rehab-Techniques-in-Motion-at-the-AAN-Meeting

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disability, Multiple Sclerosis, Uncategorized, Writing

MS can turn out to be a good thing.

Read this great blog about finding out you have MS

http://www.msconnection.org/Blog/May-2016/Dear-Cat?saved=1

Your essay really hit home for me, as it expressed exactly how i felt waiting for the dr to tell me the news. As i was walking into the doctors, there was a long hall to get to his door and i thought to myself, “when i walk out this door my life will be changed forever” and it did. But like you said, it doesn’t define me, thinking the worst is only a first response, since i had progressive kind i thought my life was over. After the initial shock of it all, was over, i developed into a calm state where i began the first day of the rest of my life. My MS stabilized and hasn’t progressed in 10 years, . One day when i was cleaning out my closets, i found my journals from the early days when i first moved to Oregon, when i worked as a timber inventory forester in the Wallowa Mts in eastern OR. As i read them, i started to chuckle and thought, these would make a good book, so i wrote three fictionalized memoirs, i never would have found the time to write, if it wasn’t because of MS. I worked 35 years in service to people with disabilities, who better to know, life can be just as good even if you use a walker or are in a wheelchair. My profession taught me how to access grants, durable medical equipment so i knew the ropes. So without MS i never would have published my three books. “The Eve Chronicles” by Diane DeVillers, check it out on amazon. Life changes, we adapt, and then finally we accept. Your story transported me back to the early days when i found out that yes MS can be a monster, but i am no longer afraid of my dragon, who waits for me, who someday will consume me, but i fight it, i do my best to adapt and move forward to what ever my path will be.

 

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disability, health care, Uncategorized

Multiple Sclerosis can be misdiagnosed for years.

dide on the beach 2014

https://plus.google.com/110281594137407899585/posts/7Fy9Zjtofhc

I went years before i found out that I had MS. at first they thought i had sympathetic nerve dystrophy in my foot, I spend loads of money on PT and alternative medicine. It wasn’t until 6 years later that i was sent to a neurologist that i finally found out i had MS. It was a relief to finally find out what the heck was going on with my body.

I had balance problems, my foot dropped causing me to twist my ankle and wrench my upper leg muscles more than a few times. I found out that i had progressive MS, the kind that can keep steadily worsening. My right leg is partially paralyzed, i walk with a walker and sometimes need to use a wheelchair. I have severe back pain, which i can now get relief from massage. During the summer, i have to make sure i don’t get too warm, as people with MS don’t process heat correctly and it can cause me to get vertigo.

The fatigue that comes with MS is a constant companion. I have to ration out my energy so i don’t hit a wall and run out of energy. But its bearable, all of it, i still have a quality of life i have always longed for. I became a writer and published three books in a paperback book called “The Eve Chronicles”.

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